Casey's 100 Ultrasong Challenge

By Clara Inspired

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Genetic diseases

Casey's daughter, Clara, has a genetic disease so rare that it doesn't even have a name. She is one of a few hundred people in the world identified as having a mutation (or "change") on her STXBP1 gene. As a result, she will have lifelong physical and intellectual disabilities. Clara is a gift and has taught us more than we could have ever imagined about what it means to live joyfully, celebrate life's small victories, and love those around you. We owe her, and others who are impacted by genetic diseases, the chance to live their very best life - and in many cases save their life. If gene therapy and other genetic breakthroughs can do this, then let's start putting one foot in front of the other!

Why play 100 songs?

In August 2019, Casey ran the Leadville 100 Mile Trail Run in 29 and 1/2 hours and raised $50,000 for Clara Inspired!! This year, since nearly all events are canceled due to COVID-19, we thought a 100 song livestream seemed (almost) equally challenging! Follow this link to watch the livestream starting at noon ET on Saturday, August 22nd: https://www.facebook.com/ClaraInspired/live_videos/

We need your help

The majority of the funds collected will be donated to organizations that are deeply involved in researching, treating, and curing genetic diseases.

A Cure?

Our goal is to cure genetic diseases within our children's lifetime. That's a long time and seems really hard, right? That's exactly the point. Together, we can do hard things.

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