When our longed for baby was placed on my chest for the very first time, I felt as if my heart had burst with love.
However, an hour later, my joy was pierced in the most heartbreaking way imaginable.
We were doing skin-to-skin and Noah was in a deep, peaceful sleep. I wanted to look under the blanket to see my beautiful boy, but he was really cold. We didn’t think anything of it, but my husband Nick went to get the nurse anyway.
The next moments will haunt us for the rest of our lives.
The nurse came in and ripped Noah off my chest. She swore and pressed the emergency button. Within the next 30 seconds, the birthing suite filled up with nurses and doctors trying to resuscitate our baby.
We couldn’t see him through the sea of medics and he was whisked away to the special care nursery.
I was in complete shock. It didn’t feel real.
Eventually a paediatrician broke the news if Noah made it through the night, he would be severely disabled. We were then faced with the gut-wrenching decision of whether to turn off his life support.
I hadn’t seen Noah since he was snatched from my chest, all I wanted to do was see my baby.
As soon as Nick and I saw Noah surrounded by all those tubes and wires, there was no question. While we still had breath in our bodies, we would fight for our son.
Since that day we have had diagnosis after diagnosis, countless operations. We’ve seen so many specialists, doctors and paediatricians. Early intervention has been a massive part of our lives. Noah has up to five appointments a week; physiotherapy, occupational therapy and speech therapy.
He works so hard to achieve the simple tasks other children can do without effort or thought.
With all the therapy we are doing with Noah, we are seeing little glimmers of hope. What’s abundantly clear is he is a very capable little boy and he is so incredibly smart. But we believe with the right therapists and stem cell therapy, Noah will achieve so much more.
Stem cell treatment is a regenerative medicine that promotes a repair of injured or damaged tissue. Noah has damage in the basil ganglia, a part of his brain which affects messages to all four of his limbs.
Unfortunately stem cell treatment is expensive and we are already struggling to pay for all of Noah’s therapy.
The money raised from this campaign will be used for stem cell treatment at a facility in LA, which is best suited to Noah’s needs and therefore more likely to get the best results. The treatment, flights and accommodation total $45,000. Intensive therapies which help get the best results from the treatment - physiotherapy, OT and speech - are another $15,000.
We have a long journey ahead, but with your help Noah can finally reach his full potential.