What is P.A.N.S/P.A.N.D.A.S
PANS/PANDAS is a relatively newly described syndrome. Children affected experience a sudden and dramatic change in their independence and ability to participate in typical childhood activities. Diagnostic criteria for PANS/PANDAS includes a sudden onset of OCD symptoms or severely restricted food intake (not explained by other neurological or medical conditions).
Children will also experience at least 2 of the following symptoms:
-Sensory or motor abnormalities
-Sleep disturbance, urinary frequency or enuresis
-Emotional lability and/or depression
-Irritability, aggression and/or severely oppositional behaviours
-Deterioration in school performance
How does P.A.N.S/P.A.N.D.A.S Occur?
PANS is typically triggered by infections, metabolic processes or environmental triggers. Onset of symptoms is often 'lightening like', whereby a child who is typically developing one day, experiences a severe change in personality and function the next day (following exposure to a specific trigger). When triggered by a Strep infection, PANS is sometimes referred to as PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections).
The good news is that early diagnosis and treatment with medications such as antibiotics, can stop the progression of this syndrome in its tracks!
there is a lack of knowledge in the medical community about PANS, which means that many children go undiagnosed and suffer unnecessarily for many years before receiving a proper diagnosis and appropriate treatment. With appropriate treatment children can make a full and complete recovery.
You can help us fight this fight!
Dr. Russell Dale is a Professor of Paediatric Neurology at Children's hospital Westmead and the University of Sydney. Not only does he diagnose and treat children with PANS, but he also has a strong interest in studying the mechanisms underlying the syndrome. He is currently leading a research project looking into the immunology of common neuropsychiatric diseases, including PANS, OCD, tic disorders and autism. His research will detail the clinical features of these neuropsychiatric disorders and treatment responses. He is also looking into the immune factors, including immunogenetic factors that may be behind these disorders. This is important research that will help other medical doctors to be better able to diagnose and treat this debilitating condition, thus helping more children with PANS get the treatment that they need and deserve.
Dr Dale is currently self-funding this very important work, and this is where we can help! By donating to this research you can help children with PANS and other neuropsychiatric disorders to have a better chance at getting the treatment they desperately need.
Who are You Supporting?
The PANS Australia and NZ Fundraising facebook group have set-up a relationship with the Fundraising Department at the Children’s Hospital Westmead, so that all donations made can be directed straight to Dr Dale’s PANS research. By donating here, you can be guaranteed that every single cent will go straight to this research. There are no administration fees for any donations made.
Funds will be held by Chuffed until we reach our target of $5000 and then this money will be transferred straight to Westmead.
More information about PANS can be found here: http://www.pandasnetwork.org/ or here http://med.stanford.edu/pans.html
More information about Dr Dale can be found here: http://www.inmr.com.au/content/prof-russell-dale and here: http://sydney.edu.au/medicine/people/academics/profiles/russell.dale.php